Julie Lyles Carr: My Latest Adventure

Tuesday, March 22, 2011

My Latest Adventure

Activating the Network.
That's what I'm doing.

The Blog Network.

As many of you know, I'm a mom of eight. And two of those kiddos are considered special needs kids, 4 of 8 with a hearing loss and 7 of 8 dealing with the effects of a neonatal stroke. I've spent a fair amount of time in waiting rooms and therapy clinics, interacting with lots of parents and kids who are facing enormous challenges.

A precious friend of mine heard me talking about the incredible needs I've encountered amongst special needs families. There are many, many families out there who have 'too much' income to qualify for Medicare/Medicaid but who are spending every last dime on doctor and therapy co-pays and for medical equipment not covered by insurance. Take two co-pays a week for therapy and over the course of a year, it adds up to over $3000 a year just in co-pays...and that's after insurance and doesn't include having to meet a deductible. Items that most people assume are covered by insurance are not, including hearing aids and a variety of important medical devices that aid in therapy goals. Things like date night for mom and dad and dance lessons for the kids go to the way side in the interest of meeting such expenses.

My friend heard my heart on the challenges faced by families and my desire to see special needs kids included in the arts, such as dance and music and drawing. I spoke of my longing for moms and dads of special needs kids to have date nights again. And my friend heard my heart when I spoke about the need for kids with learning differences to receive unparalleled tutoring to help them enjoy their educational journey.

My friend heard my heart. And went and found a financial way to make these dreams a reality. And we've launched a non-profit to help these families.

I'm humbled and blessed. And excited to see what will happen as we seek to serve these special kids.

And to that end, I'm now seeking who you may know.

It would be a tremendous blessing if the tutoring program we are designing could utilize technology for learning. Studies have shown that children with Asperger's or on the autism spectrum greatly benefit from using an iPad or similar computer tablet device in a communication and learning setting. You can read about recent information here. There is another fantastic article here that outlines the use of iPads with special needs kids. So I'm sending out a web request to see if any of you have an inroad to the good folks in the Mac world who might be interested in donating iPads for kids with learning differences in our non-profit program.

Please email me at octamom@octamom.com with any contacts you think might help. It brings me such joy to engage you, my Dear Readers and Blog Friends, in such an effort. Blessings to you all.


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